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Bruce Willis’ daughter Tallulah Willis has shared why the family of the Hollywood star is so open about his struggle with dementia.
Actress Tallulah, 29, appeared on Wednesday’s edition of The Drew Barrymore Show to share an update on the star after his diagnosis of aphasia progressed to frontotemporal dementia (FTD) earlier this year.
FTD causes problems with language comprehension and behaviour, and has meant Bruce, 68, has had to retire from acting.
Tallulah described it as an “aggressive cognitive disease – form of dementia – that is very rare.”
When host Drew Barrymore asked the daughter of Bruce and Demi Moore why the family has been so open during this difficult period, she said it was “twofold”.
Read more: Bruce Willis’ wife ‘freaked out’ when she looked up his dementia symptoms
“On one hand, it’s who we are as a family, but also, it’s really important for us to spread awareness about FTD,” Tallulah explained.
The family, including Tallulah’s sister Rumer Willis, frequently posts updates on the actor’s health on their various Instagram pages.
“If we can take something that we’re struggling with as a family,” she added.
“And individually, to help other people, to turn it around to make something beautiful about it, that’s really special for us.
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“And part of what’s been a really beautiful way for me to heal through this is becoming like an archeologist to my dad’s stuff – his world – to his little trinkets and doo-dads.”
Tallulah also revealed she’s been spending time with Bruce by listening to music together.
She described his current condition as “still the same” and said they have a “special” relationship with each other.
“He is the same… Which I think, in this regard, I’ve learned is the best thing that you can ask for,” Tallulah said.
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“And what I see is love when I am with him. And it’s my dad and he loves me.”
Close friend of the family Glenn Gordon Caron gave a more detailed update about Bruce’s condition last month.
Telling Page Six, he said: “My sense is the first one to three minutes he knows who I am.
“He’s not totally verbal; he used to be a voracious reader – he didn’t want anyone to know that – and he’s not reading now.
“All those language skills are no longer available to him, and yet he’s still Bruce.
“When you’re with him you know that he’s Bruce and you’re grateful that he’s there, but the joie de vivre is gone.”
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